PANS/PANDAS UK Charity
Last updated: 17/07/2023
PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.
One estimate suggests that up to 1 in 200 children suffer from this condition.
Resources for parents including diagnostic criteria and details of local support groups.
Resources for Medical professionals
Resources for teachers and Schools
Teacher training package
Facebook group for parents/caregivers
Facebook group for Young People age 12-17 with the condition.
Facebook group for Adults
Links to further Research
Advocacy and support from the charity
Who to contact
- Contact Name
- Paula Scott
- Contact Position
- PA to the Chair of Trustees & Community Support Executive
- Telephone
- 07425856181
-
paula.scott@panspandasuk.org
- Website
- My service's website
- https://en-gb.facebook.com/panspandasuk/
- https://www.instagram.com/pans_pandas_uk/
- https://twitter.com/pandaspans?lang=en
- Notes
Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions. Affected children can be in mainstream, alternative, specialist provision or electively home educated.
Where to go
- Notes
All of West Berkshire covered. We provide support via our Facebook group PANS PANDAS UK.
Time / Date Details
- When is it on
- 24/7
- Time of day
-
Evening
Afternoon
Morning
Lunchtime - Session Information
-
Please join our Facebook group PANS PANDAS UK
where you can obtain further support as and when needed.
Other Details
Costs
- Details
- Free at point of access, supported through the PANS/PANDAS UK Charity.
Availability
- Age Ranges
- Referral Details
Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.
Inclusion Information
Dietary Needs
- Has Provision
- No
Quality checks
- Not applicable
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